Did you miss me?

 I bet you didn’t. 

I don’t know for sure if I want to be back here. It’s been over a decade and a lot has happened. I’ve gone from being relapsing remitting to secondary progressive. I’ve met and married a wonderful man. Actually those are the two most important things that have happened. Bugger I don’t know if that first one is correct. 

I don’t think I’ve exactly had a relapse in the past decade or so but I have been admitted to hospital. At least once. I think I had a UTI. Well, I know I’ve had more than one uti but I think one of my hospital admissions was solely because of that. It’s hard to remember. In fact that’s probably why I’ve come back. I need to remember. Or at least I need to diarise what is happening so I can make sure I have a record of what’s happening. I need to have something I can look back on and go “oh that happened then.”

The thing that has happened that has prompted this return to my long neglected blog is I got the news yesterday that I have two new lesions on my brain. 

They may not be that new but they have shown up on my most recent head MRI and I don’t think I’ve had one of those for a long time. The two little buggers were unexpected. Definitely uninvited. I only had the MRI because my neurologist set it up as a precaution due to me mentioning a previously unnoticed symptom. She hadn’t expected there to be this change. I got the message through NHS app and text on Monday that she wanted to phone me the following day. 

Apparently I have been discussed at a neurology team meeting and there are a few options. I didn’t take notes during our phone conversation. I wish I had. I think I am going to get a call from a neurology (presumably MS) nurse. I think I can go back on a DMT (disease modifying therapy). It’s only looking back at this blog that I am reminded I had sworn off ever going back on a self injecting DMT. I know I had partly welcomed being deemed to have transitioned from RRMS to secondary progressive a few years ago because it meant no more relapses and no more painful self injections. I definitely know I had been told I was now secondary progressive. I’ve even been on a trial for treatment of secondary progressive MS. I don’t know whether I was on the real or dummy drug during that trial but it doesn’t matter now because these two new lesions have well and truly thrown a spanner into the works. 

So here I am. Back on my Toots MS Truth journey. A bit older but probably no wiser. Let’s see where it takes me. Welcome along for the ride.